I finally figured out why I'm so giddy about today, my 50th birthday. I'm making up for my 40th and the subsequent decade of uncertainty. It's that fucking disease that turned my 40s inside out but I've come out the other side stronger.
I literally came down with Multiple Sclerosis for my 40th birthday. I was on Sanibel Island in Florida collecting shells with my best friend (her birthday is coincidentally the same day--happy birthday Pam). A couple days later I was hit with massive fatigue and I started seeing spots in my left eye. Three weeks later the spots were all I could see and the opthamologist referred me to a neurologist. 10 days of testing and a massive round of steroids confimed my diagnosis.
I had no idea what was going to happen to me, and I was terrified. MS is a progressive disease but each case is different. I was 20 when the first doctor suggested my random symptoms could be MS. It took another 20 years for a full manifestation, though in between there was the few months I couldn't get out of a chair using my legs and the ridiculous bouts of forgetting my co-workers names. And always, the underlying fatigue that had been misdiagnosed as depression.
Fatigue is insidious. Now that mine is under control I've been trying to unlearn a lifetime of coping strategies which mostly revolve around me withdrawing from human contact and throwing up roadblocks to protect my dwindling energy. The fatigue is what eliminated most of my potential, the dreams and opportunities I could have followed if I'd had just an ounce more energy. You can't understand if you haven't experienced it, it's like constantly treading water until your body refuses to move. Then you begin to sink. There were years (yes years) where I spent most my time sleeping on my couch, fatigue having defeated and destroyed any ambition or drive left in me.
So 50. I look back at where I was ten years ago and how fucking terrified I was of my unknown, disabled future. And here I am today, immensely grateful for the life I'm living. I'm still walking, though I have bouts of cane and walker assistance. The vision and cognitive problems I had early on have gone into remission. I'm still working at a pretty good job with a company that takes good care of me (and provides the cadillac of medical insurance which has afforded me excellent support). Most of my pre-diagnosis friends walked away when I was diagnosed (including my best birthday-sharing buddy) and I'm blessed now with new friends who accept me unconditionally and support me even when I'm cranky from occassional fatigue. I couldn't ask for more.
40 was dark and nebulous and out of control. I'm giddy over 50 because I can see who I am now, what I have, and the any number of directions I can choose to go now. Choice. My path isn't set for me and this birthday I'm giddy celebrating possibilities instead of limitations.