
Systems Check, 24x30, acrylic ©Lisa Berry
My body as gone off the deep end again, nerve signals short-circuiting and all messages crossed. Not much I can do but go along for the ride and hope any long-term damage is minimal. When I'm in the darkest part of the cycle, it's hard to imagine my body, and my life, can ever return to normal or that I'll be able to recover myself again. My doctor assures me this is "normal" for MS patients and just one of many bumps in my road. Feels more like a high speed crash to me.
I went from waking up perfectly fine to losing about 60% control of my left side in less than 3 hours. By 2:00 I was having trouble holding my head up and lost the ablity to follow conversations. By Saturday I was barely out of bed and had to admit to myself that this wasn't going to pass on it's own. Steroids make me sicker now so standard treatment was out. I just wanted to sleep it off but by Monday agreed to a round of prednisone to get me on my way. Pred doesn't make me as sick as other steroids but is still incredibly harsh on the body---disorientation, insomnia, imparied vision all part of the effects. It's a rock and a hard place when the treatment is rougher than the disease.
I finished the steroids two days ago, doc says it'll be 7-10 days before I stop feeling its sickness and can tell if the treatment worked. He thinks I should have done the standard infusion treatment even though it made me sick for four months after my last relapse. We disagree on approaches because he wants to treat the disease and I insist on treating the patient, the illness, me.
I've been painting every day this week as a way to reconcile my experience. I always think I know what I'm going to paint when I walk up to the canvas but I'm surprised every time. My images have been about accepting the body, acknowledging the illness and owning the experience. I'm a long way from grace in my real life but the life of my paintings indicates the healing has begun.